One of the most difficult parts of having an invisible illness like bipolar/depression/schizophrenia/Fibromyalgia/chronic fatigue etc. is that people never really understand the depth of your pain and how much you may be going through. Someone having to live with an invisible illness has to try and do so much more to be able to survive in… Continue reading How I’d like you to treat people with an invisible illness!
Dear You, I know, what you are going through at this moment is terribly unbearable. But I want you to remember that "This pain doesn't define you." You are not this pain. You are not this disease. You are not the helplessness you experience. You are not the sympathy people give you. You are not… Continue reading Painlessly Yours – A letter to my self
I have Ehlers-Danlos Syndrome Hypermobility Type (hEDS), an inherited connective tissue disorder that leads to defects in a protein called collagen, which is the most common protein in our body. What my hEDS means in simple terms is that if my body were a building, it would be made of a defective construction material which happened to… Continue reading Woes with my right hand (and my body in general)
I am an #IBD survivor. I have been suffering for a very long time. My daughter was just three years old at the time of the onset of my illness. She had been watching me since my first severe flare up. For the last 5 years she had been really concerned as my Emergency Room visits increased significantly.… Continue reading My Secret to Good Health with #IBD
Suffering from an illness is one of the hardest things a person will ever do. There is only one thing that can make the experience a bit tolerable - the right doctor. This is the story of Mrs.Bharti Kataria. She has come out of her endless struggle because of her courage, strong will, patience and… Continue reading Finding the right doctor can make a painful journey tolerable.
Feelings of a daughter towards her mother's fight with Muscular Dystrophy.
Many of us have faced those tough times where we have gone to multiple doctors with our issues of severe pain to weird symptoms list and no idea how and why all this is happening to us. Confused and scared, with a hope that the doctor we are visiting will have all the answers to… Continue reading Why we feel a Doctor’s Directory is required?
These are the list of conditions, we at Chronic Pain India are trying to raise awareness for:- Ankylosing Spondylitis Arachnoiditis Arthritis Asthma Arthrofibrosis Ataxic Cerebral Palsy Autoimmune Atrophic Gastritis Autoimmune Diseases Avascular Necrosis Back Pain Behcet’s Disease Burning Mouth Syndrome Bursitis CADASIL- (Central Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy) Carpal Tunnel Syndrome Cauda… Continue reading List of Conditions
I developed shoulder tendinitis for the first time in my life due to shoulder pull-ups. I was doing the pull ups as a part of a physiotherapy regimen to help me become functional after multiple years of disabling neck pain.
It took me four years to get diagnosed and start proper treatment. Finding the correct doctor was one of the major challenges. Lack of awareness about the chronic pain illness was the main reason.