A Charitable Trust trying to raise awareness in India about various chronic pain conditions, rare diseases and chronic illnesses which are usually invisible to the naked eye.
Hi, I am Shruti Chopra. I have Ehlers-Danlos Syndrome and many of its comorbidities. It was an evening in late October 2015 when one evening, I stood up, felt sharp needles being hammered into my legs and feet, I fell back in bed, my legs didn't feel like mine anymore - they'd given way. I… Continue reading My EDS story by Shruti Chopra
Michelle George, a CFS warrior shares her diagnosis journey on #CFSAwarenessDay!
This World Lupus Day, the wonderful people at Chronic Pain India asked me to share my story with Lupus. A monster we can’t see but we fight every single day. So, here’s the story of a miracle living a miracle (pun intended)!
Pain is an old enemy, and a new friend. I write today to talk about my journey of coming to terms with my health conditions – Fibromyalgia Syndrome, and Bipolar Affective Disorder Type 2. I have learnt to accept that I live with these two disorders, and that I can still live a meaningful life… Continue reading Learning to Accept my Diagnosis and Moving Ahead
It took me four years to get diagnosed and start proper treatment. Finding the correct doctor was one of the major challenges. Lack of awareness about the chronic pain illness was the main reason.
I am an Indian, settled in Japan. I am blessed with one big, happy family; a loving husband, one son & daughter, my mother-in-law, my brother-in-law & his family, & my own mother & brother’s family living nearby. I always felt, I had everything one could wish for. But, things started to change in August,… Continue reading My Journey through Ulcerative Colitis : Diagnosis