A Charitable Trust trying to raise awareness in India about various chronic pain conditions, rare diseases and chronic illnesses which are usually invisible to the naked eye.
Hi, I am Shruti Chopra. I have Ehlers-Danlos Syndrome and many of its comorbidities. It was an evening in late October 2015 when one evening, I stood up, felt sharp needles being hammered into my legs and feet, I fell back in bed, my legs didn't feel like mine anymore - they'd given way. I… Continue reading My EDS story by Shruti Chopra
I have Ehlers-Danlos Syndrome Hypermobility Type (hEDS), an inherited connective tissue disorder that leads to defects in a protein called collagen, which is the most common protein in our body. What my hEDS means in simple terms is that if my body were a building, it would be made of a defective construction material which happened to… Continue reading Woes with my right hand (and my body in general)