A Charitable Trust trying to raise awareness in India about various chronic pain conditions, rare diseases and chronic illnesses which are usually invisible to the naked eye.
Fibromyalgia is a neuro-musculoskeletal disorder, also known as an invisible illness. I was diagnosed in 2014 with the same and trust me, getting a diagnosis was one thing but finding a doctor who would help you with a pain management plan is another. I say pain management because there is no treatment or cure for… Continue reading Book Review of ‘Life with Fibromyalgia’ (reviewed by Tasneem Kutubuddin)
Hello! I am Arun and am seized with a zest for living life on my own terms. Having seen the downside of life, I have chosen to be a Life Wellness Coach and offer support to people. I can say this with a tinge of sadness or anger at what life has given me but… Continue reading MY STICK MY WAY – Story By Arun Mohan
Hi, I am Shruti Chopra. I have Ehlers-Danlos Syndrome and many of its comorbidities. It was an evening in late October 2015 when one evening, I stood up, felt sharp needles being hammered into my legs and feet, I fell back in bed, my legs didn't feel like mine anymore - they'd given way. I… Continue reading My EDS story by Shruti Chopra
ಕೊರೊನಾ ವೈರಸ್ ಸೋಂಕಿಗೆ ತುತ್ತಾಗುವ ಸಂಭವವಿರುವ ಜನವರ್ಗಗಳಿಗೆ ಹಾಗು ಆರೈಕೆ ಮಾಡುವವರಿಗೆ COVID-19 ಕುರಿತು ಕೆಲವು ಮಾರ್ಗಸೂಚಿಗಳು ಮುಂದಾಳತ್ವ ವಹಿಸಿರುವವರು: ಡಾ. ಅನುಭಾಮಹಾಜನ್, (General Dentist & Founder, Chronic Pain India) ಇವರೊಂದಿಗೆ ಡಾ. ಪಿಯುಷ್ಗೋಯಲ್ (Senior consultant Pulmonogy & Critical care, Columbia Asia Hospital,Gurgaon), ಡಾ. ಪಾರುಲ್ಪ್ರಿಂಜಾ (Internal Medicine & palliative/supportive care specialist, Columbia Asia Hospital, Gurgaon), ಡಾ. ಖಾನ್ಅಮಿರ್ಮರೂಫ್, (Associate Professor, Community Medicine, UCMS… Continue reading COVID-19 Guidelines for Vulnerable Groups & Caregivers – In Kannada
When the idea of “Visualising Pain” was shared by Chronic Pain India on Facebook, it evoked instant interest, as I had heard about and done an art therapy workshop long ago but had never seen it as having such a deep connection with chronic pain. Being a writer, I am often asked how I still… Continue reading Visualising Pain Workshop Experience
A support group meeting for Chronic Pain warriors in Bengaluru, India with a twist to accept, bond, rejuvenate & walk slowly towards a better life.
Spoonie. No, this does not mean they love spoons to the point they hoard them.
Dealing with chronic illness is eye opener is many ways. It's been five years I was diagnosed with Hashimoto and every day since then has been a new lesson in itself. Be it physically, mentally or emotionally - there are new surprises awaiting me every morning. Some good, some bad but all important nevertheless. So today,… Continue reading 5 things I learnt in 5 years of dealing with chronic illness
Will I ever be able to live pain free and struggle free? Will I ever be able to fulfill all my dreams, that I worked hard my entire life for? Will I ever? ... .. . Just one simple question; I keep asking myself every single night ! Lying in the bed, drenched in tears… Continue reading Will I ? – A Pain Poem
One of the most difficult parts of having an invisible illness like bipolar/depression/schizophrenia/Fibromyalgia/chronic fatigue etc. is that people never really understand the depth of your pain and how much you may be going through. Someone having to live with an invisible illness has to try and do so much more to be able to survive in… Continue reading How I’d like you to treat people with an invisible illness!