A Charitable Trust trying to raise awareness in India about various chronic pain conditions, rare diseases and chronic illnesses which are usually invisible to the naked eye.
Music A companion when one has had enough of the real world and its trappings. A form of expression that is most universal, across all age, culture & racial barriers. Music is a crutch, an undeniable support system to any situation in life, happy or sad. A good song boosts your mood and a better… Continue reading Battle Cries & Retreats
1. But you look so good!. Yes, still I have days when my whole body is hurting and aching. 2. Most of the days I go outside is to visit my doctors. Yes, I appear confident and calm but sometimes I am anxious what new fear will unfold. 3 . When I meet my friends… Continue reading Things you don’t see about my invisible illness! by Arun Dahiya
Dear Pooja, Read this when there is minimum brain fog and your muscles are allowing you to smile. I remember you as the chubby cherub in the hills, the no-physical activity kid who used to live in some parallel reality of books and colors. I remember you as the sickly child who would always catch… Continue reading A Letter to the Warrior Woman I have become by Pooja Priyamvada
Depression occurs in phases. I battled depression for three years having had a very disturbed childhood. “There are wounds that never show on the body that are deeper and more hurtful than anything that bleeds.” ― Laurell K. Hamilton My parents didn't get along. My mother and I never had a normal relationship, as it should… Continue reading Battling Demons – Inside Out
So how different is the life of normal people from people with Chronic Pain? Well not only managing the illness and pain, everything changes its meaning when people live with chronic relentless pain. So here is my question to normal people can you deal with this daily and won't be exhausted? 1. Sleepless nights due… Continue reading How Chronic Pain changes every aspect of your life…
One of the most difficult parts of having an invisible illness like bipolar/depression/schizophrenia/Fibromyalgia/chronic fatigue etc. is that people never really understand the depth of your pain and how much you may be going through. Someone having to live with an invisible illness has to try and do so much more to be able to survive in… Continue reading How I’d like you to treat people with an invisible illness!
"What are you suffering from? Never heard of it." "You are faking it. You look totally healthy to me." "It is all in your head." "You are just finding excuses for not working." "You are being lazy. That's all" "You are such an attention seeker." "Start concentrating your energy on something useful." "You don't look… Continue reading Invisible Illness – Why is it important to understand them?