Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Lupus, Muscular Dystrophy, self care, Self Care tips, spoonie, Ulcerative Colitis

Battle Cries & Retreats

Music  A companion when one has had enough of the real world and its trappings. A form of expression that is most universal, across all age, culture & racial barriers. Music is a crutch, an undeniable support system to any situation in life, happy or sad.  A good song boosts your mood and a better… Continue reading Battle Cries & Retreats

Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Letters, Lupus, mental illness, Muscular Dystrophy, self care, spoonie, Ulcerative Colitis

A Heartfelt Note of Gratitude

Dear Readers and Supporters, As the year comes to an end, we would like to extend a heartfelt gratitude to each one of you for being a part of our journey so far. Thank you for giving us the opportunity to grow, foster, and build the idea that was a mere thought! 2019 has been… Continue reading A Heartfelt Note of Gratitude

Autoimmune conditions, chronic pain india, Hashimoto's disease, invisible illness, Letters, poem, Recipe, self care, Self Care tips, spoonie

Thyroid Awareness Month- January 2020

Chronic Illness, chronic pain conditions, chronic pain india, invisible illness, self care, Self Care tips

Book Review: The Weight of a Cherry Blossom by Shruti Buddhavarapu

Introduction Living with Chronic Illness is like being in for a new surprise everyday. Despite following all that you have been advised, your body might choose to respond differently to the same factors daily. Bringing together such experiences of day to day life is Shruti Buddhavarapu's book 'The Weight of a Cherry Blossom'. About the… Continue reading Book Review: The Weight of a Cherry Blossom by Shruti Buddhavarapu

Chronic Illness, chronic pain conditions, chronic pain india, fibromyalgia, invisible illness, mental illness, self care, Self Care tips, spoonie

Five Hacks for Dealing with Fibromyalgia

Fibromyalgia is famous for not being curable with any medicine. Therefore, we need to rely on some hacks to manage Fibromyalgia better. Here’s a list of some of them that have worked for me.

chronic pain india, invisible illness, self care, Self Care tips, spoonie

This is How I Roll #WorldDisabilityDay

With nine years of experience rolling , am pretty sure I can be a racer on my throne.. er..chair. Life is filled with moments of sour lemons, jugaad and chocolate cake. But it always comes around to chocolate cake, with cherries of course. I am Leha, a writer and mostly a dreamer with a crazy… Continue reading This is How I Roll #WorldDisabilityDay

Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, invisible illness

Living with CRPS

In continuation of our previous article on CRPS Awareness, today we will be discussing the challenges of living with CRPS and also talk to few CRPS warriors about their life.

Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Lupus, Muscular Dystrophy, self care, Self Care tips, spoonie

Gifts for Spoonies

Here are some gift ideas that would be appreciated (hopefully) by the Warriors. They could find it helpful and you would find it liberating. Finally, being able to do something, even remotely useful. So, it's a win-win (as much as it can be in circumstances like this).

Chronic Illness, chronic pain conditions, chronic pain india, invisible illness

In conversation with Mr. Udaykumar Bagade

Next in our series of featuring Pain Warriors, all throughout the Pain Awareness Month, is Mr. Udaykumar Bagade. “Strength does not come from winning. Your struggles develop your strengths. When you go through hardships and decide not to surrender, that is strength.” – Arnold Schwarzenegger Making these words his motto, Udaykumar did not let an… Continue reading In conversation with Mr. Udaykumar Bagade

Central Pain Syndrome, Chronic Illness, chronic pain conditions, Complex Regional Pain Syndrome, invisible illness

How chronic pain and chronic illness sufferers are treated in emergencies in India

Today, I am not writing here as the girl trying to raise awareness for chronic pain and chronic illnesses. Today, I am writing as a chronic pain sufferer. Three years back, I was diagnosed with Complex Regional Pain Syndrome which has now converted into a condition called Central Pain Syndrome. Both are very uncommon conditions.… Continue reading How chronic pain and chronic illness sufferers are treated in emergencies in India