Autoimmune conditions, Hashimoto's disease, Letters, spoonie

A Heartfelt Note of Gratitude

Dear Readers and Supporters, As the year comes to an end, we would like to extend a heartfelt gratitude to each one of you for being a part of our journey so far. Thank you for giving us the opportunity to grow, foster, and build the idea that was a mere thought! 2019 has been… Continue reading A Heartfelt Note of Gratitude

Autoimmune conditions, chronic pain india, Hashimoto's disease, invisible illness, Letters, poem, Recipe, self care, Self Care tips, spoonie

Thyroid Awareness Month- January 2020

Chronic Illness, chronic pain conditions, chronic pain india, fibromyalgia, invisible illness, mental illness, self care, Self Care tips, spoonie

Five Hacks for Dealing with Fibromyalgia

Fibromyalgia is famous for not being curable with any medicine. Therefore, we need to rely on some hacks to manage Fibromyalgia better. Here’s a list of some of them that have worked for me.

spoonie

This is How I Roll #WorldDisabilityDay

With nine years of experience rolling , am pretty sure I can be a racer on my throne.. er..chair. Life is filled with moments of sour lemons, jugaad and chocolate cake. But it always comes around to chocolate cake, with cherries of course. I am Leha, a writer and mostly a dreamer with a crazy… Continue reading This is How I Roll #WorldDisabilityDay

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Living with CRPS

In continuation of our previous article on CRPS Awareness, today we will be discussing the challenges of living with CRPS and also talk to few CRPS warriors about their life.

Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Lupus, Muscular Dystrophy, self care, Self Care tips, spoonie

Gifts for Spoonies

Here are some gift ideas that would be appreciated (hopefully) by the Warriors. They could find it helpful and you would find it liberating. Finally, being able to do something, even remotely useful. So, it's a win-win (as much as it can be in circumstances like this).

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In conversation with Mr. Udaykumar Bagade

Next in our series of featuring Pain Warriors, all throughout the Pain Awareness Month, is Mr. Udaykumar Bagade. “Strength does not come from winning. Your struggles develop your strengths. When you go through hardships and decide not to surrender, that is strength.” – Arnold Schwarzenegger Making these words his motto, Udaykumar did not let an… Continue reading In conversation with Mr. Udaykumar Bagade

Autoimmune conditions, Letters, Micro Blogs, spoonie, Uncategorized

Things you don’t see about my invisible illness! by Arun Dahiya

1. But you look so good!. Yes, still I have days when my whole body is hurting and aching. 2. Most of the days I go outside is to visit my doctors. Yes, I appear confident and calm but sometimes I am anxious what new fear will unfold. 3 . When I meet my friends… Continue reading Things you don’t see about my invisible illness! by Arun Dahiya

But yes, today I am happy to achieve something that earlier I thought impossible. I don't know how long I would continue , but at the end of the day I understand I tried my best. And I fought a good battle.
Autoimmune conditions, Letters, Uncategorized

Celebrating Little Victories by Arun Dahiya

Who doesn't like celebrations, those claps and being appreciated once in a while. Since childhood we are used to waiting for such moments and cherish them in our own ways. But if despite being young, you are someone who has been dealing with physical and mental health issues for years now, this may not happen… Continue reading Celebrating Little Victories by Arun Dahiya

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How chronic pain and chronic illness sufferers are treated in emergencies in India

Today, I am not writing here as the girl trying to raise awareness for chronic pain and chronic illnesses. Today, I am writing as a chronic pain sufferer. Three years back, I was diagnosed with Complex Regional Pain Syndrome which has now converted into a condition called Central Pain Syndrome. Both are very uncommon conditions.… Continue reading How chronic pain and chronic illness sufferers are treated in emergencies in India