A Charitable Trust trying to raise awareness in India about various chronic pain conditions, rare diseases and chronic illnesses which are usually invisible to the naked eye.
Fibromyalgia is a neuro-musculoskeletal disorder, also known as an invisible illness. I was diagnosed in 2014 with the same and trust me, getting a diagnosis was one thing but finding a doctor who would help you with a pain management plan is another. I say pain management because there is no treatment or cure for… Continue reading Book Review of ‘Life with Fibromyalgia’ (reviewed by Tasneem Kutubuddin)
While living with a Chronic Illness can have its own challenges, books and movies sometimes act as a respite which help us cope with our illnesses better. Today, we have with us, Arun Dahiya who shares her list of recommended reads on ME/ CFS which have impacted her positively.
Hi, I am Shruti Chopra. I have Ehlers-Danlos Syndrome and many of its comorbidities. It was an evening in late October 2015 when one evening, I stood up, felt sharp needles being hammered into my legs and feet, I fell back in bed, my legs didn't feel like mine anymore - they'd given way. I… Continue reading My EDS story by Shruti Chopra
About four years ago, in May 2016, I had the first inkling that there is something wrong going on in my brain. A vein on the left side of my brain was pulsating, and I was having a severe anxiety attack. That was the start of my Fibromyalgia. At that time I didn’t know what… Continue reading Fibromyalgia in Men by Manik Gupta
Michelle George, a CFS warrior shares her diagnosis journey on #CFSAwarenessDay!
This World Lupus Day, the wonderful people at Chronic Pain India asked me to share my story with Lupus. A monster we can’t see but we fight every single day. So, here’s the story of a miracle living a miracle (pun intended)!
Initiative by Dr. Anubha Mahajan, (General Dentist & Founder, Chronic Pain India) in collaboration with Dr. Piyush Goel (Senior consultant Pulmonogy & Critical care, Columbia Asia Hospital,Gurgaon), Dr. Parul Prinja (Internal Medicine & palliative/supportive care specialist, Columbia Asia Hospital, Gurgaon), Dr. Khan Amir Maroof, (Associate Professor, Community Medicine, UCMS & GTB Hospital, Dilshad Garden, New… Continue reading COVID-19 Guidelines for Vulnerable Groups & Caregivers