Who doesn't like celebrations, those claps and being appreciated once in a while. Since childhood we are used to waiting for such moments and cherish them in our own ways. But if despite being young, you are someone who has been dealing with physical and mental health issues for years now, this may not happen… Continue reading Celebrating little victories..
Think of pain as a friend. A terrible, toxic friend. Who shows up uninvited, burrows into your life. You can't ask him for help. You can't expect him to understand you and your problems. You're just fundamentally dissimilar. But stuck together, like a buddy cop movie no one asked for. This friend will take up… Continue reading Description of Pain by a Lupus fighter.
A year ago, this day, my eyes were opened to how petty my problems were, and how ignorant an educated idiot I was. Or maybe I was not to be blamed entirely. For no one and no institute ever brought into focus, anything about Chronic Pain. So, naturally, it was quite tough for me to… Continue reading Dear friend, I’m getting there, and I believe you!
So how different is the life of normal people from people with Chronic Pain? Well not only managing the illness and pain, everything changes its meaning when people live with chronic relentless pain. So here is my question to normal people can you deal with this daily and won't be exhausted? 1. Sleepless nights due… Continue reading How Chronic Pain changes every aspect of your life…
Fibromyalgia, a chronic pain condition, not known to many has been recently brought into the limelight by the international pop star Lady Gaga whose documentary ‘Five Foot Two’ on Netflix explores her struggle with this condition. Fibromyalgia is a chronic disorder that causes intense widespread pain, hypersensitivity, chronic fatigue and sleep problems. Diagnosing fibromyalgia is… Continue reading Living with Fibromyalgia – Lady Gaga’s pain story
Will I ever be able to live pain free and struggle free? Will I ever be able to fulfill all my dreams, that I worked hard my entire life for? Will I ever? ... .. . Just one simple question; I keep asking myself every single night ! Lying in the bed, drenched in tears… Continue reading Will I ? – A Pain Poem
Last year was tough. I was diagnosed with Fibromyalgia, a neuro-musculoskeletal pain disorder and my chronic pains basically decided everything for me. No, it has no cure. Chronic pain is a bitch . It eats and gnaws on you slowly leaving you such that you will never be whole again. It kills a part of… Continue reading The year of not giving up
One of the most difficult parts of having an invisible illness like bipolar/depression/schizophrenia/Fibromyalgia/chronic fatigue etc. is that people never really understand the depth of your pain and how much you may be going through. Someone having to live with an invisible illness has to try and do so much more to be able to survive in… Continue reading How I’d like you to treat people with an invisible illness!
When you suffer from chronic pain for a long time, a lot of changes come into your life. You have to adjust your habits, your environment, your routines accordingly. Chronic pain doesn't affect the person suffering through it alone, it affects your family too. Your parents, siblings, spouse all of them get affected by it… Continue reading My everyday struggle with chronic pain, changed my mother’s point of view
Dear You, I know, what you are going through at this moment is terribly unbearable. But I want you to remember that "This pain doesn't define you." You are not this pain. You are not this disease. You are not the helplessness you experience. You are not the sympathy people give you. You are not… Continue reading Painlessly Yours – A letter to my self