A Charitable Trust trying to raise awareness in India about various chronic pain conditions, rare diseases and chronic illnesses which are usually invisible to the naked eye.
So how different is the life of normal people from people with Chronic Pain? Well not only managing the illness and pain, everything changes its meaning when people live with chronic relentless pain. So here is my question to normal people can you deal with this daily and won't be exhausted? 1. Sleepless nights due… Continue reading How Chronic Pain changes every aspect of your life…
Fibromyalgia, a chronic pain condition, not known to many has been recently brought into the limelight by the international pop star Lady Gaga whose documentary ‘Five Foot Two’ on Netflix explores her struggle with this condition. Fibromyalgia is a chronic disorder that causes intense widespread pain, hypersensitivity, chronic fatigue and sleep problems. Diagnosing fibromyalgia is… Continue reading Living with Fibromyalgia – Lady Gaga’s pain story
Will I ever be able to live pain free and struggle free? Will I ever be able to fulfill all my dreams, that I worked hard my entire life for? Will I ever? ... .. . Just one simple question; I keep asking myself every single night ! Lying in the bed, drenched in tears… Continue reading Will I ? – A Pain Poem
Last year was tough. I was diagnosed with Fibromyalgia, a neuro-musculoskeletal pain disorder and my chronic pains basically decided everything for me. No, it has no cure. Chronic pain is a bitch . It eats and gnaws on you slowly leaving you such that you will never be whole again. It kills a part of… Continue reading The year of not giving up
One of the most difficult parts of having an invisible illness like bipolar/depression/schizophrenia/Fibromyalgia/chronic fatigue etc. is that people never really understand the depth of your pain and how much you may be going through. Someone having to live with an invisible illness has to try and do so much more to be able to survive in… Continue reading How I’d like you to treat people with an invisible illness!
I developed shoulder tendinitis for the first time in my life due to shoulder pull-ups. I was doing the pull ups as a part of a physiotherapy regimen to help me become functional after multiple years of disabling neck pain.
It took me four years to get diagnosed and start proper treatment. Finding the correct doctor was one of the major challenges. Lack of awareness about the chronic pain illness was the main reason.
Story of a young woman living with Interstitial Cystitis.
Chronic pain comes with its own ups and downs. A struggle hard to explain others and then there is this constant urge to get better. You start making these coping mechanisms and strategies to deal with it. With time, slowly you start accepting your pain (takes months to years) depending on how you are dealing… Continue reading Why I say, “I am fine.”, when I am actually not