Autoimmune conditions

My Journey through Ulcerative Colitis : Diagnosis

I am an Indian, settled in Japan. I am blessed with one big, happy family; a loving husband, one son & daughter, my mother-in-law, my brother-in-law & his family, & my own mother & brother’s family living nearby. I always felt, I had everything one could wish for. But, things started to change in August,… Continue reading My Journey through Ulcerative Colitis : Diagnosis

Autoimmune conditions, Chronic Illness, chronic pain conditions, invisible illness, mental illness

Invisible Illness – Why is it important to understand them?

"What are you suffering from? Never heard of it." "You are faking it. You look totally healthy to me." "It is all in your head." "You are just finding excuses for not working." "You are being lazy. That's all" "You are such an attention seeker." "Start concentrating your energy on something useful." "You don't look… Continue reading Invisible Illness – Why is it important to understand them?

Central Pain Syndrome, Chronic Illness, chronic pain conditions, Complex Regional Pain Syndrome, invisible illness

How chronic pain and chronic illness sufferers are treated in emergencies in India

Today, I am not writing here as the girl trying to raise awareness for chronic pain and chronic illnesses. Today, I am writing as a chronic pain sufferer. Three years back, I was diagnosed with Complex Regional Pain Syndrome which has now converted into a condition called Central Pain Syndrome. Both are very uncommon conditions.… Continue reading How chronic pain and chronic illness sufferers are treated in emergencies in India

Autoimmune conditions, fibromyalgia, Hashimoto's disease, invisible illness

Why I say, “I am fine.”, when I am actually not

Chronic pain comes with its own ups and downs. A struggle hard to explain others and then there is this constant urge to get better. You start making these coping mechanisms and strategies to deal with it. With time, slowly you start accepting your pain (takes months to years) depending on how you are dealing… Continue reading Why I say, “I am fine.”, when I am actually not

Central Pain Syndrome, Chronic Illness, chronic pain conditions, Complex Regional Pain Syndrome, invisible illness

The urge to write – Is it the pain talking or is it the fear of getting lost due to pain?

Where should I start from? I have so many questions lined up. Probably, I am going nuts. I mentioned PAIN. Its in block letters because it's excruciating and suffocating. Have you ever experienced a feeling when you just cant breath when your lungs are functioning normally. But, it is just that feeling when you want… Continue reading The urge to write – Is it the pain talking or is it the fear of getting lost due to pain?

Chronic Illness, chronic pain conditions, Complex Regional Pain Syndrome, invisible illness

Denied Medicine in an Emergency Scenario by MedPlus pharmacy

I am writing this blog post today because I was in a horrifying scenario last night. I have a chronic pain condition and sometimes due to my condition I get these attacks when my laryngeal muscles start collapsing. I have difficulty speaking and breathing and I have collapsed twice due to not getting my medicine… Continue reading Denied Medicine in an Emergency Scenario by MedPlus pharmacy

the road less travelled
Autoimmune conditions, Chronic Illness, chronic pain conditions, invisible illness, Letters

The Road Less Travelled 

A post dedicated to times when our health came between our paths (career, goals, etc. ) and we were scared to take a decision.