A Charitable Trust trying to raise awareness in India about various chronic pain conditions, rare diseases and chronic illnesses which are usually invisible to the naked eye.
"What are you suffering from? Never heard of it." "You are faking it. You look totally healthy to me." "It is all in your head." "You are just finding excuses for not working." "You are being lazy. That's all" "You are such an attention seeker." "Start concentrating your energy on something useful." "You don't look… Continue reading Invisible Illness – Why is it important to understand them?
Story of a young woman living with Interstitial Cystitis.
I still remember the horror of getting that ankle sprain, leading to a wrongfully put cast on my left leg in April 2014 and the experience through it, leading to a year long journey from one doctor to another in Delhi NCR, with no clue what I was suffering from and how it's going to… Continue reading Why I started Chronic Pain India..
31st December 2017, (Last blog post of the year.) Since last 4 days, I have been wondering what did I do this year. Highlights of the year. But, I couldn't come across any happy memories. This year had been a tough year. Lots of falling ill, pain issues, new symptoms, an extended leave from work… Continue reading Beginning of a New Year! (2018)
Chronic pain comes with its own ups and downs. A struggle hard to explain others and then there is this constant urge to get better. You start making these coping mechanisms and strategies to deal with it. With time, slowly you start accepting your pain (takes months to years) depending on how you are dealing… Continue reading Why I say, “I am fine.”, when I am actually not
Where should I start from? I have so many questions lined up. Probably, I am going nuts. I mentioned PAIN. Its in block letters because it's excruciating and suffocating. Have you ever experienced a feeling when you just cant breath when your lungs are functioning normally. But, it is just that feeling when you want… Continue reading The urge to write – Is it the pain talking or is it the fear of getting lost due to pain?
I am writing this blog post today because I was in a horrifying scenario last night. I have a chronic pain condition and sometimes due to my condition I get these attacks when my laryngeal muscles start collapsing. I have difficulty speaking and breathing and I have collapsed twice due to not getting my medicine… Continue reading Denied Medicine in an Emergency Scenario by MedPlus pharmacy
A post dedicated to times when our health came between our paths (career, goals, etc. ) and we were scared to take a decision.