A Charitable Trust trying to raise awareness in India about various chronic pain conditions, rare diseases and chronic illnesses which are usually invisible to the naked eye.
In its most recent budget in February 2018, the Indian government attempted to create an ambitious health insurance plan for almost half of the Indian population. Known as Ayushman Bharat, the effort underlines the importance of having health insurance for every individual. Tune into any business channel on TV and you will see financial experts… Continue reading Tips on Dealing with Health Insurance in India
Last year was tough. I was diagnosed with Fibromyalgia, a neuro-musculoskeletal pain disorder and my chronic pains basically decided everything for me. No, it has no cure. Chronic pain is a bitch . It eats and gnaws on you slowly leaving you such that you will never be whole again. It kills a part of… Continue reading The year of not giving up
Feelings of a daughter towards her mother's fight with Muscular Dystrophy.
Many of us have faced those tough times where we have gone to multiple doctors with our issues of severe pain to weird symptoms list and no idea how and why all this is happening to us. Confused and scared, with a hope that the doctor we are visiting will have all the answers to… Continue reading Why we feel a Doctor’s Directory is required?
To relieve pain and soreness and to trick yourself into exercising.
"What are you suffering from? Never heard of it." "You are faking it. You look totally healthy to me." "It is all in your head." "You are just finding excuses for not working." "You are being lazy. That's all" "You are such an attention seeker." "Start concentrating your energy on something useful." "You don't look… Continue reading Invisible Illness – Why is it important to understand them?
Story of a young woman living with Interstitial Cystitis.
I still remember the horror of getting that ankle sprain, leading to a wrongfully put cast on my left leg in April 2014 and the experience through it, leading to a year long journey from one doctor to another in Delhi NCR, with no clue what I was suffering from and how it's going to… Continue reading Why I started Chronic Pain India..
Today, I am not writing here as the girl trying to raise awareness for chronic pain and chronic illnesses. Today, I am writing as a chronic pain sufferer. Three years back, I was diagnosed with Complex Regional Pain Syndrome which has now converted into a condition called Central Pain Syndrome. Both are very uncommon conditions.… Continue reading How chronic pain and chronic illness sufferers are treated in emergencies in India
Where should I start from? I have so many questions lined up. Probably, I am going nuts. I mentioned PAIN. Its in block letters because it's excruciating and suffocating. Have you ever experienced a feeling when you just cant breath when your lungs are functioning normally. But, it is just that feeling when you want… Continue reading The urge to write – Is it the pain talking or is it the fear of getting lost due to pain?