A Charitable Trust trying to raise awareness in India about various chronic pain conditions, rare diseases and chronic illnesses which are usually invisible to the naked eye.
Fibromyalgia, a chronic pain condition, not known to many has been recently brought into the limelight by the international pop star Lady Gaga whose documentary ‘Five Foot Two’ on Netflix explores her struggle with this condition. Fibromyalgia is a chronic disorder that causes intense widespread pain, hypersensitivity, chronic fatigue and sleep problems. Diagnosing fibromyalgia is… Continue reading Living with Fibromyalgia – Lady Gaga’s pain story
One of the most difficult parts of having an invisible illness like bipolar/depression/schizophrenia/Fibromyalgia/chronic fatigue etc. is that people never really understand the depth of your pain and how much you may be going through. Someone having to live with an invisible illness has to try and do so much more to be able to survive in… Continue reading How I’d like you to treat people with an invisible illness!
Dear You, I know, what you are going through at this moment is terribly unbearable. But I want you to remember that "This pain doesn't define you." You are not this pain. You are not this disease. You are not the helplessness you experience. You are not the sympathy people give you. You are not… Continue reading Painlessly Yours – A letter to my self
I am an #IBD survivor. I have been suffering for a very long time. My daughter was just three years old at the time of the onset of my illness. She had been watching me since my first severe flare up. For the last 5 years she had been really concerned as my Emergency Room visits increased significantly.… Continue reading My Secret to Good Health with #IBD