Autoimmune conditions, Chronic Illness, chronic pain conditions, chronic pain india, Ehler Danlos Syndrome, invisible illness

My EDS story by Shruti Chopra

Hi, I am Shruti Chopra. I have Ehlers-Danlos Syndrome and many of its comorbidities. It was an evening in late October 2015  when one evening, I stood up, felt sharp needles being hammered into my legs and feet, I fell back in bed, my legs didn't feel like mine anymore - they'd given way. I… Continue reading My EDS story by Shruti Chopra

Autoimmune conditions, Caregiver, Chronic Illness, chronic pain conditions, chronic pain india, Ehler Danlos Syndrome

Ehlers Danlos Syndrome Awareness Month

Ask The Experts, Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, COVID-19, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Lupus, mental illness, Muscular Dystrophy, Ulcerative Colitis

COVID-19 : Assistance in procuring medicines and consulting doctors

We understand this lockdown isn't easy and the uncertainty about its future adds to the unease. However, Team CPI wants you to know, YOU are not alone. If you or anyone you know is facing difficulty in getting their medicines due to lockdown restrictions or is unable to seek doctor's consultancy for any ailment they… Continue reading COVID-19 : Assistance in procuring medicines and consulting doctors

Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, COVID-19, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Lupus, mental illness, Muscular Dystrophy, poem, Recipe, self care, Self Care tips, spoonie, Ulcerative Colitis

COVID-19 Guidelines for Vulnerable Groups & Caregivers – In Kannada

ಕೊರೊನಾ ವೈರಸ್ ಸೋಂಕಿಗೆ ತುತ್ತಾಗುವ ಸಂಭವವಿರುವ ಜನವರ್ಗಗಳಿಗೆ ಹಾಗು ಆರೈಕೆ ಮಾಡುವವರಿಗೆ COVID-19 ಕುರಿತು ಕೆಲವು ಮಾರ್ಗಸೂಚಿಗಳು ಮುಂದಾಳತ್ವ ವಹಿಸಿರುವವರು: ಡಾ. ಅನುಭಾಮಹಾಜನ್, (General Dentist & Founder, Chronic Pain India) ಇವರೊಂದಿಗೆ ಡಾ. ಪಿಯುಷ್ಗೋಯಲ್ (Senior consultant Pulmonogy & Critical care, Columbia Asia Hospital,Gurgaon), ಡಾ. ಪಾರುಲ್ಪ್ರಿಂಜಾ (Internal Medicine & palliative/supportive care specialist, Columbia Asia Hospital, Gurgaon), ಡಾ. ಖಾನ್ಅಮಿರ್ಮರೂಫ್, (Associate Professor, Community Medicine, UCMS… Continue reading COVID-19 Guidelines for Vulnerable Groups & Caregivers – In Kannada

Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Lupus, mental illness, Muscular Dystrophy, self care, Self Care tips, Ulcerative Colitis

COVID-19 Guidelines for Vulnerable Groups & Caregivers

Initiative by Dr. Anubha Mahajan, (General Dentist & Founder, Chronic Pain India) in collaboration with Dr. Piyush Goel (Senior consultant Pulmonogy & Critical care, Columbia Asia Hospital,Gurgaon), Dr. Parul Prinja (Internal Medicine & palliative/supportive care specialist, Columbia Asia Hospital, Gurgaon), Dr. Khan Amir Maroof, (Associate Professor, Community Medicine, UCMS & GTB Hospital, Dilshad Garden, New… Continue reading COVID-19 Guidelines for Vulnerable Groups & Caregivers

Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Lupus, Muscular Dystrophy, self care, Self Care tips, spoonie, Ulcerative Colitis

Battle Cries & Retreats

Music  A companion when one has had enough of the real world and its trappings. A form of expression that is most universal, across all age, culture & racial barriers. Music is a crutch, an undeniable support system to any situation in life, happy or sad.  A good song boosts your mood and a better… Continue reading Battle Cries & Retreats

Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Letters, Lupus, mental illness, Muscular Dystrophy, self care, spoonie, Ulcerative Colitis

A Heartfelt Note of Gratitude

Dear Readers and Supporters, As the year comes to an end, we would like to extend a heartfelt gratitude to each one of you for being a part of our journey so far. Thank you for giving us the opportunity to grow, foster, and build the idea that was a mere thought! 2019 has been… Continue reading A Heartfelt Note of Gratitude

Autoimmune conditions, Caregiver, Central Pain Syndrome, Centralised Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Lupus, Muscular Dystrophy, self care, Self Care tips, spoonie

Gifts for Spoonies

Here are some gift ideas that would be appreciated (hopefully) by the Warriors. They could find it helpful and you would find it liberating. Finally, being able to do something, even remotely useful. So, it's a win-win (as much as it can be in circumstances like this).

understanding & exploring chronic pain
Autoimmune conditions, Caregiver, Central Pain Syndrome, Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, Ehler Danlos Syndrome, fibromyalgia, Hashimoto's disease, IBD, Interstitial Cystitis, invisible illness, Lupus, Micro Blogs, Muscular Dystrophy, self care, Self Care tips, spoonie, spoonie, Ulcerative Colitis

Understanding and Exploring Chronic Pain

A support group meeting for Chronic Pain warriors in Bengaluru, India with a twist to accept, bond, rejuvenate & walk slowly towards a better life.

Hypermobility syndrome
Chronic Illness, chronic pain conditions, Ehler Danlos Syndrome, invisible illness

Woes with my right hand (and my body in general)

I have Ehlers-Danlos Syndrome Hypermobility Type (hEDS), an inherited connective tissue disorder that leads to defects in a protein called collagen, which is the most common protein in our body. What my hEDS means in simple terms is that if my body were a building, it would be made of a defective construction material which happened to… Continue reading Woes with my right hand (and my body in general)