My everyday struggle with chronic pain, changed my mother's point of view
Caregiver, Central Pain Syndrome, chronic pain conditions, Complex Regional Pain Syndrome, invisible illness

My everyday struggle with chronic pain, changed my mother’s point of view

When you suffer from chronic pain for a long time, a lot of changes come into your life. You have to adjust your habits, your environment, your routines accordingly. Chronic pain doesn't affect the person suffering through it alone, it affects your family too. Your parents, siblings, spouse all of them get affected by it… Continue reading My everyday struggle with chronic pain, changed my mother’s point of view

Central Pain Syndrome, Chronic Illness, chronic pain conditions, Complex Regional Pain Syndrome, invisible illness

How chronic pain and chronic illness sufferers are treated in emergencies in India

Today, I am not writing here as the girl trying to raise awareness for chronic pain and chronic illnesses. Today, I am writing as a chronic pain sufferer. Three years back, I was diagnosed with Complex Regional Pain Syndrome which has now converted into a condition called Central Pain Syndrome. Both are very uncommon conditions.… Continue reading How chronic pain and chronic illness sufferers are treated in emergencies in India

Autoimmune conditions, Chronic Illness, chronic pain conditions, Complex Regional Pain Syndrome, Micro Blogs, self care

Beginning of a New Year! (2018)

31st December 2017, (Last blog post of the year.) Since last 4 days, I have been wondering what did I do this year. Highlights of the year. But, I couldn't come across any happy memories. This year had been a tough year. Lots of falling ill, pain issues, new symptoms, an extended leave from work… Continue reading Beginning of a New Year! (2018)

Autoimmune conditions, Chronic Illness, chronic pain conditions, Complex Regional Pain Syndrome, fibromyalgia, Hashimoto's disease, Interstitial Cystitis, invisible illness, Ulcerative Colitis

Why I say, “I am fine.”, when I am actually not

Chronic pain comes with its own ups and downs. A struggle hard to explain others and then there is this constant urge to get better. You start making these coping mechanisms and strategies to deal with it. With time, slowly you start accepting your pain (takes months to years) depending on how you are dealing… Continue reading Why I say, “I am fine.”, when I am actually not

Chronic Illness, chronic pain conditions, Complex Regional Pain Syndrome, invisible illness

The urge to write – Is it the pain talking or is it the fear of getting lost due to pain?

Where should I start from? I have so many questions lined up. Probably, I am going nuts. I mentioned PAIN. Its in block letters because it's excruciating and suffocating. Have you ever experienced a feeling when you just cant breath when your lungs are functioning normally. But, it is just that feeling when you want… Continue reading The urge to write – Is it the pain talking or is it the fear of getting lost due to pain?

Chronic Illness, chronic pain conditions, Complex Regional Pain Syndrome, invisible illness

Denied Medicine in an Emergency Scenario by MedPlus pharmacy

I am writing this blog post today because I was in a horrifying scenario last night. I have a chronic pain condition and sometimes due to my condition I get these attacks when my laryngeal muscles start collapsing. I have difficulty speaking and breathing and I have collapsed twice due to not getting my medicine… Continue reading Denied Medicine in an Emergency Scenario by MedPlus pharmacy