An effort to raise awareness in India about various chronic pain conditions and chronic illness which are usually invisible through naked eyes.
So how different is the life of normal people from people with Chronic Pain? Well not only managing the illness and pain, everything changes its meaning when people live with chronic relentless pain. So here is my question to normal people can you deal with this daily and won't be exhausted? 1. Sleepless nights due… Continue reading How Chronic Pain changes every aspect of your life…
Fibromyalgia, a chronic pain condition, not known to many has been recently brought into the limelight by the international pop star Lady Gaga whose documentary ‘Five Foot Two’ on Netflix explores her struggle with this condition. Fibromyalgia is a chronic disorder that causes intense widespread pain, hypersensitivity, chronic fatigue and sleep problems. Diagnosing fibromyalgia is… Continue reading Living with Fibromyalgia – Lady Gaga’s pain story
Will I ever be able to live pain free and struggle free? Will I ever be able to fulfill all my dreams, that I worked hard my entire life for? Will I ever? ... .. . Just one simple question; I keep asking myself every single night ! Lying in the bed, drenched in tears… Continue reading Will I ? – A Pain Poem
Last year was tough. I was diagnosed with Fibromyalgia, a neuro-musculoskeletal pain disorder and my chronic pains basically decided everything for me. No, it has no cure. Chronic pain is a bitch . It eats and gnaws on you slowly leaving you such that you will never be whole again. It kills a part of… Continue reading The year of not giving up
One of the most difficult parts of having an invisible illness like bipolar/depression/schizophrenia/Fibromyalgia/chronic fatigue etc. is that people never really understand the depth of your pain and how much you may be going through. Someone having to live with an invisible illness has to try and do so much more to be able to survive in… Continue reading How I’d like you to treat people with an invisible illness!
When you suffer from chronic pain for a long time, a lot of changes come into your life. You have to adjust your habits, your environment, your routines accordingly. Chronic pain doesn't affect the person suffering through it alone, it affects your family too. Your parents, siblings, spouse all of them get affected by it… Continue reading My everyday struggle with chronic pain, changed my mother’s point of view
Dear You, I know, what you are going through at this moment is terribly unbearable. But I want you to remember that "This pain doesn't define you." You are not this pain. You are not this disease. You are not the helplessness you experience. You are not the sympathy people give you. You are not… Continue reading Painlessly Yours – A letter to my self
I have Ehlers-Danlos Syndrome Hypermobility Type (hEDS), an inherited connective tissue disorder that leads to defects in a protein called collagen, which is the most common protein in our body. What my hEDS means in simple terms is that if my body were a building, it would be made of a defective construction material which happened to… Continue reading Woes with my right hand (and my body in general)
I am an #IBD survivor. I have been suffering for a very long time. My daughter was just three years old at the time of the onset of my illness. She had been watching me since my first severe flare up. For the last 5 years she had been really concerned as my Emergency Room visits increased significantly.… Continue reading My Secret to Good Health with #IBD
Suffering from an illness is one of the hardest things a person will ever do. There is only one thing that can make the experience a bit tolerable - the right doctor. This is the story of Mrs.Bharti Kataria. She has come out of her endless struggle because of her courage, strong will, patience and… Continue reading Finding the right doctor can make a painful journey tolerable.
