Chronic Illness, chronic pain conditions, chronic pain india, Complex Regional Pain Syndrome, invisible illness, Letters, poem, self care

CRPS Awareness Day

We at Chronic Pain India believe in the power of support groups and hence have formed one exclusively for Pain Warriors and Caregivers. While medication and therapy is important, it is equally important to reach out to fellow pain warriors and bare your heart to them. It must also be remembered how on such landmark days, we must bring our voices together in solidarity with all pain warriors. We understand the hesitation and we understand the fears. We believe you and assure you that your voices will never go unheard. Join us, we need more voices to be added to ours!

Today is CRPS Awareness Day. Complex regional pain syndrome (CRPS), also known as reflex sympathetic dystrophy (RSD), is a long term condition that often worsens with time. It is characterized by severe pain and sensitivity, swelling, and changes in the skin. (Source: Wikipedia). 

We have with us today, two CRPS warriors who have decided to add their voice to ours in form of beautiful write ups. One is Meenakshi Venkataraman from our CPI Support group and the other is none other than Dr. Anubha Mahajan, the founder of CPI who is also a CRPS Warrior since 2014. While Meenakshi shared a poignant poem with us, Dr. Mahajan shared a heartwarming letter to CRPS with a beautiful sketch done by her to commensurate the occasion today.

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calling out movie lovers

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Hey friend,

How are you ? You remember it has been more than 5 years we know each other. You can’t believe this, right? Neither did I! Ohh! You can believe it!

I did not know back then you came with an intention to stay forever. Walking with me every day like a shadow. Reminding me about our friendship every single time, I was having fun with my friends or family, I went out for grocery or when I was working. You were just their every time like a constant reminder of our bond, even at the doctor’s office. Weren’t you scared? The doctors might break our bond or you just came all planned.

Five long years living with you, celebrating our bond here I am. You are my lurking shadow, a constant reminder, mischief creator. Now that I look back, we have been together a lot, I accept your annoying presence, the constant torture, your mood swings, you lashing out on me time to time. We have crossed so many hurdles, despite the fact that you have tried to push me down many times. You are the jealous kinds, I have to deal with it. Like you are dealing with me because I take you along with me everywhere even when you don’t want to go, even when you create a menace because you love the bed more. But I don’t!

So here’s the deal. I am ready to stick along with you even longer but don’t you think I will give into your sabotaging plans. You have to deal with me, like I deal with you. Because I ain’t stopping and if you want to stick with me, you have to adjust!

Happy CRPS Awareness day to you!

Copy of September 8th, 2019 (3)

Do share your thoughts on this in comments below.

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If you, your loved or anyone you know one are a pain warrior or caregiver and want to share your story with us, do get in touch.

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